Category Archives: Uncategorized

6th Annual OLJ Golf Outing

The 6th annual OLJ Golf Outing is sold out. This year’s event will be held at The Links @ Challedon in Mt. Airy, MD on Friday Sept. 26th, 2014. There will be 124 golfers participating. To date there are over 30 sponsors for the event.  We are hoping to raise over $20,000. The luncheon will be provided by Scittino’s Italian Market.

Families of SMA 2014 Conference

 
Family Friendly Research Poster Session at The 2014 Annual Spinal Muscular Atrophy Conference.

 

June 26, 2014.

 

At the 2014 Annual SMA Conference, the second Family Friendly Research Poster Session was held. During the event, 31 research groups presented their scientific findings, including 10 different SMA drug programs. The unique event allowed for one-on-one interactions among the 1400 families and researchers in attendance to share information. Both the scietinsts and families seemed to really value the opportunity.

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FSMA Walk and Roll

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The Chesapeake chapter of Families of Spinal Muscular Atrophy held its 2nd annual Walk and Roll on Saturday, April 26th at Old National Pike Park in Mt. Airy, MD. The walk was attended by over 200 people.  On The Go Markets catered the event  and music was provided by DJ Alfie Aldave. Over $20,000 was raised. For families who have children that have been diagnosed with spinal muscular atrophy, it was a wonderful day to get together, meet new friends and talk to other families whose children also are affected by SMA . Our Little Jewels thank all those who attended and made the Walk and Roll a very successful event.

OLJ Spring Fundraiser Finale

Our 2014 spring fundraiser was held at Kelsey’s Irish Restaurant on Thursday, April 17th, 2014. We set a goal of $15,000. The event raised $14, 825 with Kelsey’s donation forthcoming. Live music was provided by Brendan Pelan and Chick Hall. Btween 200 and 250 people attended throughout the evening. Raffle winners were drawn at 10PM. Many thanks to the staff at Kelsey’s for making the evening a wonderful success.

Raffle prize winning tickets were drawn at 10PM. The winners were as follows: Rocco’s Dinner for ( 6)-Lisa Roeder, Ravens Football-Michael O’Connell, Redskins Football-Susan Smith, Orioles Baseball-Jim Hampson, 43″ Samsung TV-Tina Wehland, GoPro Camera-Spencer Cavalier, Irish Print-Tom Booth, Sterling Silver Necklace-George Beserock, Disney Word Park Hopper Passes-Dennis Reitz, Scittino’s Dinner for (6)-Gale Clark, Basket of Cheer-Tricia Morano, Irish Basket of Cheer-Paige Ford, Gift Box of Fine Wine-Tina Wehland, Rocco’s Basket of Homemade Wine-George Beserock.

Thanks to all who attended and made the evening another true success. Special thanks to all of the volunteers who handled the raffle ticket table throughout the evening and to all who donated items for the spring fundraiser.